Does Social Security Pay for Caregiving Costs? | Cake Blog (2023)

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If you are reading this article, you may be looking for ways to help cut down or address caregiving costs. It doesn’t matter if you’re at the beginning, starting out on your caregiving duties, or if you feel like caregiving tasks have become somehow insurmountable or trickier to navigate.

Jump ahead to these sections:

  • A Word About Social Security: Social Security Disability Insurance and Supplemental Security Income
  • Social Security Disability Insurance (SSDI)
  • Will Social Security Disability Insurance Pay For A Caregiver?
  • Supplemental Security Income (SSI)
  • Will Supplemental Security Income Pay For A Caregiver?
  • Will Traditional Social Security Pay For A Caregiver?
  • Will Social Security Pay for Other Costs Associated With Caregiving?
  • Other Caregiver and Caregiving Cost Resources

Like with most finances, piecing together a manageable in-home care budget is part detective work and part homework. It will take knowing what is available first, and then applying for anything and everything you think might help you pay for caregiving costs.

According to AARP, an unpaid family caregiver can expect to pay up to 20 percent of their income on caregiving-related costs. It is common for a caregiver to leave the workforce altogether to help care for a loved one. In addition to the lost income, there may be a negative impact on eventual social security benefits as well.

As you can see, long-term caregiving can also have long-term financial consequences.

A Word About Social Security: Social Security Disability Insurance and Supplemental Security Income

Social security benefits are complicated. Most people are familiar with traditional social security benefits that anyone who has worked long enough will be eligible for when they reach age 62. This is considered a retirement benefit.

There are two other social security benefits as well: Social Security Disability Insurance and Supplemental Security Income, better known as SSDI and SSI. To know whether SSDI or SSI can help you pay for caregiving, it is important to understand the federal requirements to qualify and the differences between the two.

The source of information to help you determine benefits for any of these programs is the Social Security Administration. Their site is where you can determine your expected retirement benefits and apply for social security disability benefits or supplemental security income. Some people opt to hire a disability attorney who specializes in these benefits to assist with determining eligibility.

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Social Security Disability Insurance (SSDI)

To qualify for social security disability insurance you must meet the following criteria:

  • You have to have worked a specified amount of time in jobs approved by the Social Security Administration. In other words, you have paid social security taxes.
  • You have to have a medical disability that meets the Social Security Administration’s definition of disabled. The medical condition has to be so severe that you are unable to work.
  • The Social Security Administration has a comprehensive list of medical conditions that qualify, including but not limited to ALS, cancer, heart conditions, Cerebral Palsy, Multiple Sclerosis, and many others. In addition, certain mental health problems also qualify including, but not limited to, schizophrenia, intellectual disorders, psychotic disorders, autism, etc.
  • Your disability is expected to last more than a year or lead to death. The Social Security Administration updates its qualifying disability list continuously. You may need to work with your doctor and an attorney to see if you qualify under the current criteria.
  • The more you earn, the higher your disability benefit will be up to a certain limit.
  • Eligible family members can receive benefits based on your work record. A spouse or child could receive as much as 50 percent of your monthly benefit. After you receive SSDI benefits for two years, you become eligible for Medicare.

Will Social Security Disability Insurance Pay For A Caregiver?

SSDI will not pay for caregiving directly except in the case where the recipient uses the monthly benefit to pay someone privately. A family member caring for someone who is disabled may qualify for either SSDI or SSI.

However, there are some other cases where other folks may receive money or the recipient could use it to pay for a caregiver. Here are some possibilities:

  • The spouse of the disabled person, should they meet certain requirements (mainly, 62 years of age), are also eligible to receive financial assistance. They may have been financially dependent on the now disabled person. The spouse receives that assistance regardless of whether they provide care to their disabled spouse, and the amount they receive does not increase if they provide care.
  • The other option is for the disabled person to use their funds to pay a family caregiver. You and your disabled family member can put together a care contract so that you can receive funds for caregiving. It is recommended to speak with an attorney to make sure your contract is legal.

When in doubt, consult with a representative from your local Social Security office to determine your eligibility.

Supplemental Security Income (SSI)

SSI pays benefits to disabled adults and children who have limited income and resources. SSI benefits also are payable to people 65 and older without disabilities who meet the financial criteria.

In order to qualify, SSI is need-based and requires a review of financial details, personal information, and medical records. The big difference with SSI is that there are no work credits necessary to qualify. Work credits can be “obtained” by making the minimum amount yearly income made required for social security eligibility.

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With Supplemental Security Income, the program is income-based only. As a result, it is possible to qualify for all three programs mentioned above: social security retirement benefits, SSI, and SSDI.

» MORE: Your family has 500 hours of work to do after you die. Learn how to make it easier.

Will Supplemental Security Income Pay For A Caregiver?

Supplemental Security Income will not pay a caregiver directly. Again, you can consider using the funds you receive to pay a company that provides care staff or put together a contract for services with a family member.

Since SSI is an income-based program, many people may qualify for a state Medicaid program as well. Medicaid is a joint state and federal program that is income-based. Each state has its own criteria for qualification, but Medicaid does offer caregiver benefits under certain conditions.

Most people think of Medicaid as the financial resource that pays for long-term care in a nursing home. Many states have programs specifically designed to keep people out of nursing homes and pay for care in the home instead.

These are sometimes called Medicaid Waiver programs. Depending on the state where you live, these services might be available if you qualify for Medicaid:

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  • In-home health care
  • Personal care services, such as help bathing, eating, and moving
  • Home care services, including help with household chores, like shopping or laundry
  • Caregiver support
  • Minor modifications to the home to make it accessible
  • Medical equipment

In most states, it is possible for family members to get paid for providing care to someone on Medicaid. The applicant must apply for Medicaid and select a program that allows the recipient to choose his or her own caregiver, often called "consumer-directed care.” These state programs go under different titles: Medicaid HCBS Waivers, Medicaid State Plan Personal Care programs, and even non-Medicaid state-funded assistance programs.

Medicaid may also pay for ongoing caregiving assistance including:

  • Basic cleaning and laundry tasks
  • Meal preparation or delivery
  • Transportation to and from medical appointments
  • Personal care services, including dressing and bathing
  • Minor modifications, like adding a wheelchair ramp or widening a doorway
  • Durable medical equipment

Will Traditional Social Security Pay For A Caregiver?

Retirement social security will not pay a caregiver directly. However, depending on your earnings amount through your working lifetime, and when you decide to take your social security income, you may make enough to pay for a caregiver.

It all depends on your other retirement income and caregiving needs. Meeting with an estate planning attorney can help you sort out long-term caregiving costs and help you find ways to pay for it.

Will Social Security Pay for Other Costs Associated With Caregiving?

Social security does not directly pay for other costs associated with caregiving except as you may use the income benefit to defray those costs.

Other caregiving costs include, but are not limited to, durable medical equipment, home accessibility modifications, medications, and personal care supplies.

Similarly, Social Security also pays what's known as a death benefit after your death. This is a lump-sum, one-time payment to a surviving spouse or child. These funds can go towards paying for burial or funeral costs, depending on the family's needs. This includes virtual funerals through providers like GatheringUs.

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Post-planning tip:If you are the executor for a deceased loved one, the emotional and technical aspects of handling their unfinished business can be overwhelming without a way to organize your process. We have a post-loss checklistthat will help you ensure that your loved one's family, estate, and other affairs are taken care of.

» MORE: Commit to making a legal plan. Become a member now.

Other Caregiver and Caregiving Cost Resources

If you don’t qualify for SSDI or SSI and don’t want to take early social security retirement benefits, here are some other possible sources of assistance to consider:

  • VA Benefits. If you or your spouse has been in the military, you may be eligible for in-home caregiver services or reimbursement through the VA.
  • Long-term Care Insurance. Some families opt to purchase long-term care insurance to help pay for the cost of in-home, assisted living, or nursing care.
  • National Council on Aging. The National Council on Aging has a Benefits CheckUp Program where you put in your zip code to find financial resources in your area.
  • Area Agencies on Aging. Your Area Agency on Aging will have a wealth of information on caregiver support programs. A good place to start to find your location is the National Association of Area Agencies on Aging. Your Area Agency on Aging may also have reduced fee attorneys who can help determine social security benefits.

Paying for Caregiver and Other Caregiving Costs with Social Security

As you have most likely figured out, it is a jungle out there. Understanding social security and how it might help can be very complicated. Finding a good benefits attorney, although costly at first (and there is a limit to what a disability attorney can charge), may save you money in the end by qualifying you for benefits you didn’t know were available.

It takes some work to find out, but researching can help you and your loved one understand what is out there.

If you're looking for more on caregiving, read our guides onhow to become a certified caregiverandself-care for caregivers.

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  1. “Explore The Benefits You May Be Due.” Social Security Administration.
  2. “Surprising Out of Pocket Costs For Caregivers.” AARP.
  3. “VA Caregiver Support.” U.S. Department of Veterans Affairs.
  4. “Benefits CheckUp.” National Council on Aging.
  5. National Association of Area Agencies on Aging.


Does Social Security Pay for Caregiving Costs? | Cake Blog? ›

Retirement social security will not pay a caregiver directly. However, depending on your earnings amount through your working lifetime, and when you decide to take your social security income, you may make enough to pay for a caregiver. It all depends on your other retirement income and caregiving needs.

Will social Security pay me to take care of an elderly person? ›

Unfortunately, the simple answer is no. Social Security programs don't directly pay caregivers. However, there are still many ways a caregiver can interact with Social Security programs to benefit a loved one.

Does social Security care how much money you have in the bank? ›

SSA limits the value of resources you own to no more than $2,000. The resource limit for a couple is only slightly more at $3,000. Resources are any assets that can be converted into cash, including bank accounts. However, some assets you own may not affect eligibility for the program.

What is the financial burden of caregiving? ›

According to Howard Gleckman in Forbes, “Of the $266,000 in average costs for those families who use paid care, $140,000, or 55 percent, is paid out of pocket.” More than half of that money will likely come from one individual's resources. And often, that individual is the caregiver.

What is the loophole for social Security disability spousal benefits? ›

The Restricted Application Loophole

One Social Security loophole allowed married individuals to begin receiving a spousal benefit at full retirement age, while letting their own retirement benefit grow. This was done by filing what is called a restricted application.

What states pay you to take care of a family member? ›

New JerseyMedicaid Managed Long Term Services and Support and the New Jersey Assistance for Community Caregivers
North CarolinaIn-Home Aide Program
North DakotaFamily Personal Care under the Aged and Disabled Waiver
12 more rows

How does Social Security work for the elderly? ›

For the insured worker, benefit eligibility begins at age 62; and by deferring the claim (up to age 70), the beneficiary is entitled to actuarial increases in the monthly benefit amount. Once claimed, monthly benefits continue, with annual cost-of-living adjustments, for the remaining years of life.

How do I get the $16728 Social Security bonus? ›

To acquire the full amount, you need to maximize your working life and begin collecting your check until age 70. Another way to maximize your check is by asking for a raise every two or three years. Moving companies throughout your career is another way to prove your worth, and generate more money.

Does Social Security watch your bank account? ›

The Social Security Administration can only check your bank accounts if you have allowed them to do so. For those receiving Supplemental Security Income (SSI), the SSA can check your bank account because they were given permission.

What is the Social Security 5 year rule? ›

You must have worked and paid Social Security taxes in five of the last 10 years. • If you also get a pension from a job where you didn't pay Social Security taxes (e.g., a civil service or teacher's pension), your Social Security benefit might be reduced.

What are the most common expenses incurred by caregivers? ›

High medical, housing expenses

Contributing to a loved one's housing expenses — paying for rent, mortgage, assisted living, home modifications and more — accounted for more than half of all costs incurred by caregivers surveyed. Medical expenses added up quickly, too.

What is the most burdensome cases of caregiving? ›

An abundance of research notes that family caregivers experience a significant burden in providing care to patients with specific illness such as mental health illness [5], parkinson disease [6], dementia [7] and terminal cancer [8].

How much does unpaid caregiving cost the US? ›

WASHINGTON — The unpaid work provided by family caregivers is valued at an estimated $600 billion, according to the latest report in AARP's Valuing the Invaluable series. This is a $130 billion increase in unpaid contributions from family caregivers since the last report was released in 2019.

What is the 10 year marriage rule for Social Security? ›

If you are divorced, your ex-spouse can receive benefits based on your record (even if you have remarried) if: Your marriage lasted 10 years or longer. Your ex-spouse is unmarried. Your ex-spouse is age 62 or older.

Can I take my Social Security and then switch to spousal benefit? ›

Yes. If you qualify for your own retirement and spouse's benefits, we will always pay your own benefits first. If your benefit amount as a spouse is higher than your own retirement benefit, you will get a combination of the two benefits that equals the higher amount.

Why isn't my wife's spousal benefit 50% of my Social Security retirement benefit? ›

Deeming means that when you apply for either your spousal benefit or your retirement benefit, you're deemed to have filed for both and you only receive essentially the larger of the two. If your retirement benefit is larger, you receive it instead of your smaller spousal benefit.

Can I get paid to be my husband's caregiver? ›

If someone with a disability already receives Medicaid, their state may allow a family member or friend to become a paid caregiver. Many states call this a consumer-directed personal assistance program. Each state has different requirements and rules. Contact your state's Medicaid office for more information.

Will Medicare pay a spouse to be a caregiver? ›

Medicare won't pay a person to care for their elderly or disabled spouse. Although Medicare may pay a person who is a medical professional to provide medical care for their spouse, the program doesn't pay spouses to provide personal care or assist with daily living needs.

Can I pay myself to care for my parent? ›

One of the most frequent questions asked at Family Caregiver Alliance is, “How can I be paid to be a caregiver to my parent?” If you are going to be the primary caregiver, is there a way that your parent or the care receiver can pay you for the help you provide? The short answer is yes, as long as all parties agree.

What is the average Social Security check for elderly? ›

You can wait until as late as age 70 — something many Americans do, because the longer you wait, the higher your monthly payment. For those who are collecting Social Security at age 65, the average payment in 2022 was about $2,484 a month, according to the Social Security Administration.

What is the program that sends payments to the elderly? ›

SSI is a federal government program that provides a monthly cash benefit for the elderly (age 65 and over), blind, or disabled of any age who have extremely low income and very few resources.

What is the average Social Security check for seniors? ›

Average payments for all retirees enrolled in the Social Security program increased to approximately $1,827, according to the Social Security Administration (SSA). However, if you retire in 2023 at age 62, your maximum benefit would be much lower, $2,572.

How do I get the $16000 Social Security bonus? ›

How to Get a Social Security Bonus
  1. Option 1: Increase Your Earnings. Social Security benefits are based on your earnings. ...
  2. Option 2: Wait Until Age 70 to Claim Social Security Benefits. ...
  3. Option 3: Be Strategic With Spousal Benefits. ...
  4. Option 4: Make the Most of COLA Increases.
Apr 21, 2023

What is the highest amount you can get from Social Security? ›

The maximum Social Security benefit in 2023 is $3,627 at full retirement age. It's $4,555 per month if retiring at age 70 and $2,572 if retiring at age 62.

How do I get $144 added back to my Social Security check? ›

To qualify for a Medicare giveback benefit, you must be enrolled in Medicare Part A and B. You must be responsible for paying the Part B Premiums; you should not rely on state government or other local assistance for your Part B premiums.

Can I have a savings account while on Social Security? ›

There aren't any savings account limits if you're applying for Social Security Disability Insurance. To receive Supplemental Security Income, you can only have up to $2,000 in your name. You may keep up to $100,000 in an ABLE account and it won't impact SSI eligibility.

Does money in the bank affect Social Security benefits? ›

Social Security does not count pension payments, annuities, or the interest or dividends from your savings and investments as earnings. They do not lower your Social Security retirement benefits.

Will I lose my Social Security if I sell my house? ›

When she sells her home, will she lose her any of her benefits? A. She won't lose her Social Security, because eligibility does not depend upon her income or other resources, but her Supplemental Security Income (“SSI”) and Medi-Cal are at risk unless she plans ahead.

What year will Social Security stop? ›

At the current trajectory, it appears very likely that the Social Security trust fund could run out of money in or around 2033. But that doesn't mean it will. Lawmakers could make a number of changes that would shore up the trust fund and put it in financial health for 75 years, according to Goss and Glenn.

At what age does Social Security stop accruing? ›

Delayed Retirement Credits (En español)

Social Security retirement benefits are increased by a certain percentage for each month you delay starting your benefits beyond full retirement age. The benefit increase stops when you reach age 70.

What will happen when Social Security runs out? ›

Essentially, yes, Social Security's reserve funds will “run out,” but the majority of benefits will still be covered by taxpayers. And if Congress adjusts the structure of the program by 2035 through tax increases, benefit reductions or some other method, Social Security may be able to continue providing full benefits.

What is the largest health care expense for the elderly? ›

The government pays for two-thirds of health care spending by the elderly, with Medicare accounting for 55 percent, Medicaid for 10 percent, and other government programs for 3 percent. Medicaid funds a larger share of expenses for women than for men (12 percent vs.

What are the top 3 expenses of most households? ›

Key household budget statistics
Average 2021 household earning and expenditure statistics
Housing expenditures$22,624
Transportation expenditures$10,961
Food expenditures$8,289
Increase in household expenditures from 20209.1%
4 more rows
Dec 5, 2022

What are reasonable expenses examples? ›

Reasonable Expenses will include costs of fees, meals, lodging and transportation. These are to be itemized in the request for reimbursement.

What is the negative side of caregiving? ›

The emotional effects of caregiving are generally bad. Caring for an older adult has been associated with anxiety, depression, and higher use of psychoactive medications. Caregivers often feel overwhelmed, isolated, tired, apathetic about activities they once enjoyed, agitated, irritable, angry, sad, and worried.

What is an unpaid caregiver? ›

Definitions. A caregiver—sometimes called an informal caregiver—is an unpaid individual (for example, a spouse, partner, family member, friend, or neighbor) involved in assisting others with activities of daily living and/or medical tasks.

What kind of government policy supports caregiving for elderly relatives? ›

Program and Policy Areas

The National Family Caregiver Support Program (NFCSP) provides grants to states and territories to fund various supports that help family and informal caregivers care for older adults in their homes for as long as possible.

How much does a full time caregiver earn in USA? ›

Salaries by years of experience in the United States
Years of experiencePer hour
1 to 2 years$15.29
3 to 5 years$15.93
6 to 9 years$16.27
More than 10 years-
1 more row

How much does a live in caregiver earn in the US? ›

How Much Do Live In Caregiver Jobs Pay per Week?
Annual SalaryMonthly Pay
Top Earners$65,000$5,416
75th Percentile$55,000$4,583
25th Percentile$32,500$2,708

How much does an elderly caregiver earn in USA? ›

The average Senior Caregiver salary in the United States is $28,278 as of May 25, 2023, but the salary range typically falls between $26,088 and $30,835.

How many years do you need to be married to get spouse Social Security? ›

What are the marriage requirements to receive Social Security spouse's benefits? Generally, you must be married for one year before you can get spouse's benefits. However, if you are the parent of your spouse's child, the one-year rule does not apply.

Can two wives collect Social Security from one husband? ›

Can I claim benefits on either one's record? Yes, you can. Notify the Social Security Administration that you were married more than once and may qualify for benefits on more than one spouse's earnings record. They will be able to tell you which record provides the higher payment and set your benefit accordingly.

What is the loophole for Social Security spousal benefits? ›

The Restricted Application Loophole

One Social Security loophole allowed married individuals to begin receiving a spousal benefit at full retirement age, while letting their own retirement benefit grow. This was done by filing what is called a restricted application.

Do married couples get 2 Social Security checks? ›

Married couples get two separate Social Security checks, and there is no "marriage penalty" for Social Security benefits.

When my husband dies do I get his Social Security and mine? ›

If your spouse dies, do you get both Social Security benefits? You cannot claim your deceased spouse's benefits in addition to your own retirement benefits. Social Security only will pay one—survivor or retirement. If you qualify for both survivor and retirement benefits, you will receive whichever amount is higher.

What is the 5 year rule for Social Security? ›

You must have worked and paid Social Security taxes in five of the last 10 years. If you also get a pension from a job where you didn't pay Social Security taxes (e.g., a civil service or teacher's pension), your Social Security benefit might be reduced.

Can my wife take Social Security at 62 and then switch to spousal benefit? ›

Can I file for my Social Security at 62 and switch to spousal benefits later? Only if your spouse is not yet receiving retirement benefits. In this case, you can claim your own Social Security beginning at 62 and make the switch to spousal benefits when your husband or wife files.

Can a family member get paid to be a caregiver in TN? ›

Veteran Directed Home & Community Based Care in TN

The caregiving family member will be paid the hourly rate determined by the VA, typically $8-$21 per hour.

Can you retire to take care of a parent? ›

Retire early to care for parent(s) full-time - those who are close to their planned retirement age may opt to retire early and care for aging parents. Yet, claiming Social Security before your full retirement age (FRA) can reduce payouts for life.

How to get paid by the state for taking care of someone in Illinois? ›

How do I get paid by Medicaid in Illinois for caregiving? To get paid by Medicaid in Illinois for caring for your loved one, you should reach out to your loved one's Medicaid plan and ask about "self-direction of funds" to pay family caregivers.

Does Social Security pay you to take care of a family member? ›

If your loved one is approved for disability benefits, you may be wondering how much Social Security caregiver pay is. Unfortunately, the SSA does not directly pay caregivers for taking care of a loved one. In other words, the SSA does not have a Social Security disability caregiver pay program.

What is the pay rate for in caregivers in TN? ›

Full Time Caregiver Salary in Tennessee
Annual SalaryHourly Wage
Top Earners$37,850$18
75th Percentile$33,813$16
25th Percentile$24,729$12

What happens to senior citizens when they run out of money? ›

Aging adults without money to support them through the rest of their lives can stay in a nursing home for up to 100 days—and Medicaid will cover the cost for this brief period. Seniors who reside in an assisted living facility and run out of funds will be evicted.

Is it my obligation to take care of my parents? ›

The legal requirement for children to take care of our parents is different from state to state. While some states mandate that children, who are financially able, must support parents who are impoverished, other states do not put any requirement or obligation on children to care for older parents.

Do I really have to take care of my parents? ›

Everyone is obligated to take care of their elderly parents. Yes, you can refuse to care for elderly parents.

Can a caregiver collect Social Security? ›

If you are caring for a parent or loved one, you could be eligible to receive Social Security benefits as their primary caregiver.

Will Medicare pay for me to take care of my mother? ›

Medicare (government health insurance for people age 65 and older) does not pay for long-term care services, such as in-home care and adult day services, whether or not such services are provided by a direct care worker or a family member.

Can I quit my job to take care of my mother? ›

People without a choice except to leave their jobs to take care of the elderly may be eligible for unemployment insurance (UI) benefits. According to a recent unemployment insurance benefits study conducted for family caregivers, around 25 states have caregiver-friendly unemployment rules.

How much does Illinois pay family caregivers? ›

Salaries by years of experience in Illinois
Years of experiencePer hour
1 to 2 years$15.97
3 to 5 years$16.63
6 to 9 years$16.99
More than 10 years-
1 more row

How much does a 24 hour caregiver earn in Illinois? ›

The average Overnight Caregiver salary in Illinois is $35,672 as of May 25, 2023, but the range typically falls between $32,406 and $39,424.

What benefits do seniors get in Illinois? ›

  • Health Care Coverage.
  • Senior Health Insurance Programs (SHIP)
  • Prescription Assistance.
  • Property Tax Issues.
  • Social Security Issues.
  • Transportation Issues.
  • Utility Assistance.


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